Epilepsy man's 'thank you' for help during fit

By Stephanie Jones-Berry
November 10, 2010

A PENSIONER who had an epileptic seizure in Guildford town centre while waiting for a bus now wants to thank the people who came to his aid.

Graham Block, 71, had been visiting the RHS Wisley gardens to see the autumnal colours when a delay meant he arrived at the Friary bus station at 4.15pm last Wednesday (November 3), with an hour to wait for his next connection.

By 5.30pm, Mr Block’s usual bus had not arrived and the seizure hit as he was asking a member of staff what was happening. Mr Block said: “The lights were very bright, so I had a blackout. Bright lights, stress and camera flashes can bring on my blackouts. When this one came on I couldn’t get outside in time. I felt it coming on and got out my special card that I carry in different languages explaining my condition. A young lady and a bus inspector who were there were very concerned. The bus inspector arranged a bus to take me home to Wood Street. I just want to thank them both.”

The former insurance clerk has suffered with epilepsy since the age of 24 but said that in recent years the condition had become more manageable. He said: “I have had epilepsy for the past 47 years and in the last few years it has faded away. I used to have big fits, preceded by blinding flashes but I have learned to read the signs and now can usually get out in time to stop it happening. I still can’t go out in the evening – even a church hall has lights that are too bright.”

Louise Whalley, from charity Epilepsy Action, said: “We’re delighted to hear that people in the local community assisted someone who was having an epileptic seizure in public. It’s clear that the epilepsy awareness information this man was carrying was vital in getting him the help and support he needed. Carrying medical ID lets people know what to do in case of a seizure and informs medical professionals that a person has epilepsy. We would recommend that all people with epilepsy carry a medical awareness card with them. They may also want to consider wearing identity jewellery.”

Mr Block believes his condition may have been triggered by playing lacrosse as a young man. His wife, Janet, helps him to manage his medical condition as she is able to read the signals as well. Mr Block said: “She makes me go outside. Every Saturday we go to the supermarket and I often have to stand outside.”

Epilepsy Action provides a range of epilepsy awareness cards free of charge from www.epilepsy.org.uk/shop.

source :www.getsurrey.co.uk/news

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CHILDREN WITH EPILEPSY

Parents often feel frightened when they hear that their child had epilepsy. However, anticonvulsant drugs can prevent the occurrence of seizures in 75 percent of epileptic children. In the past, those diagnosed with epilepsy were thought to need lifelong drug treatment to prevent their seizures. The treatments used often had adverse side effects that precluded them from participating in normal social activities. However, new treatments and therapy protocols are available today. Ask your child's physician about any new options available for treatment.

Not Necessarily a Life Sentence

Today, pediatric physicians encourage children taking anticonvulsant medications, who have not experienced seizures for two years or beyond, to gradually reduce the dosage of medication to zero. Seventy-five percent of these experience indefinite freedom from seizures. Of these, a few have a chance of never having another seizure, while others have a 50 percent chance of having a future epileptic event. Only your child's physician can determine whether it's safe to taper off anti-epileptic medication, but if your child has been seizure free for over two years, ask your physician about this option.

Effective Treatment for the Most Common Type of Epilepsy

While childhood epilepsy occurs in many forms, the most common is absence epilepsy. With absence epilepsy, the child exhibits frequent episodes in which he will stop his current activity and stare blankly for 30 seconds or less. He then resumes the activity with no confusion and no recollection of the event. Until recently, physicians were uncertain as to which anti-epilepsy drug worked best to control this type of the disorder. The results of a clinical trial, managed by NIH Childhood Epilepsy Study Group, were released in March 2010. The study revealed that the drugs Zarontin and Depakote, ethosuximide and valproic acid respectively, are significantly more successful in controlling the seizures associated with absence epilepsy than others.

When Anticonvulsant Therapies Fail

Although anticonvulsant therapy can successfully control the seizures of 75 percent of epileptic children, this leaves a significant number of children for whom medication is not effective. These children continue to have several seizures on a daily basis despite medications, or suffer from debilitating side effects from the anticonvulsant drugs. While not new, treatment approaches do exist for these patients. One option involves surgery, which inactivates or removes the area of the brain that causes the seizures. The other requires that the child adhere to a high-fat diet that highly restricts carbohydrates for two years. After two years, the child can begin to gradually add carbohydrates back into his or her diet without the occurrence of seizures. While neither of these approaches is new, they represent valid options when others fail. Your child's doctor can determine whether he or she is a good candidate for these therapies.

Prognosis for Children With Epilepsy

Children with idiopathic epilepsy, epilepsy of an unknown cause, have a better chance of controlling their seizures with medication and going into remission as they approach adulthood. Approximately 40 percent of those with absence and benign epilepsy types outgrow the disorder. Even those with more severe classifications of epilepsy, which they are unlikely to outgrow, can often live active, normal lives with consistent and appropriate treatments.

Researchers and scientists regularly conduct clinical trials investigating new therapies and treatments for both children and adults with epilepsy. These include pharmacological treatments as well as investigations into possible environmental and genetic causes of the various classifications of epilepsy.

A Parent's Role in Seizure Management

Parents play a significant role in helping their epileptic child attain success in controlling seizures. Certainly this involves making certain medications are taken on schedule and in prescribed amounts. But parents must also provide moral and emotional support for their epileptic child. They can achieve this by educating the child about the disorder and helping him participate in appropriate social and physical activities to promote a feeling of normalcy and belonging.

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