tag:blogger.com,1999:blog-5560344044035866703.post5176718899605097104..comments2023-10-20T17:30:23.034+08:00Comments on SERENE'S EPILEPSY LEGACY: Serene Lowhttp://www.blogger.com/profile/10603303063018672231noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-5560344044035866703.post-50416334136635518932010-05-17T15:45:01.947+08:002010-05-17T15:45:01.947+08:00I agree. It saddens me thinking about what happens...I agree. It saddens me thinking about what happens to misunderstood PWE's (I'm going to have to use this now!). Even I have been wrongfully diagnosed. About half a year ago, a psychologist labeled me crazy because I described to my neurologist that I was having an audio seizure. She put down on my medical record that I am insane and hospitalized me for almost a week. They didn't even tell me the real reason I was being hospitalized. My doctor simply said they wanted to monitor my seizures again while changing my medications, when really they were monitoring my behavior. I saw psychologist after psychologist, from all over the city. They were rude and didn't care for my feelings, and the questions that they asked me were unbelievable. <br />I hope that one day people will learn that PWE's are not crazy. Some respect would be nice as well.Anonymoushttps://www.blogger.com/profile/14757329026283457061noreply@blogger.comtag:blogger.com,1999:blog-5560344044035866703.post-44773206602988756712010-05-15T22:20:58.439+08:002010-05-15T22:20:58.439+08:00Hi Amanda,
It is also quite the same over here in...Hi Amanda,<br /><br />It is also quite the same over here in Malaysia. Patients are being wrongly diagnosed as mentally ill and sent to mental hospitals instead of having their epilepsy being diagnosed and treated with appropriate anti epileptic drugs.<br /><br />You and I, together with many other active PWE (People with epilepsy) advocates will have to continually strive to educate and empower more and more people with the right knowledge of epilepsy.Serene Lowhttps://www.blogger.com/profile/10603303063018672231noreply@blogger.comtag:blogger.com,1999:blog-5560344044035866703.post-63738587516462641752010-05-13T12:19:02.736+08:002010-05-13T12:19:02.736+08:00This is so horrible and wrong on so many levels; I...This is so horrible and wrong on so many levels; I began to cry while reading. There are many misconceptions about what Epilepsy is, even today. In Mideivel times people were killed even for having Epilepsy. The disease was believed to be demonic posession. In Bible times this was also the case. I am a strong believer in God. I think that what happened then was very different. I even read once that people would have their heads drilled to "let the demons leak out"... It's just sick. Even here in America Epileptics used to be automatically sent to mental hospitals and treated like Monkeys against their own will. People should not believe in these old foolish ways. This is exactly why you and I do what we do; to show the world the truth. People need to open their eyes. Thanks for this great entry.Anonymoushttps://www.blogger.com/profile/14757329026283457061noreply@blogger.com